Most people have never been asked, and assume it involves more than it does. Here is what an observational memory study actually looks like.


April is National Volunteer Month, and research volunteering is the kind almost nobody thinks of. Most people picture a drug trial with side effects and hospital visits. A great deal of memory research looks nothing like that.

Why Are Healthy Volunteers Needed at All?

Because you cannot tell whether a result is unusual without knowing what usual looks like.

Every memory test is read against reference values: what people of a given age, education and background typically score. Those values come from healthy volunteers. If they were gathered from a narrow group, the test reads everyone else less accurately, and the people most often misread are the ones least represented.

So healthy volunteers are not a control group in the background. They are what makes the measurement mean anything.

What Does Taking Part Involve?

In an observational study, no treatment is given and nothing about your medical care changes. You do some testing and the researchers learn from the results.

Our own normative study is a single session of about half an hour, done from home. You answer some questions about your health and background, then complete a set of memory and language tasks out loud. There is no follow-up unless you choose it.

Do You Get Your Results?

In a study like this one, no, and the reason is worth understanding. The purpose is to establish what normal performance looks like, not to assess anyone. Giving individual interpretations would mean making clinical judgements the study was not designed to support.

If you want your own memory assessed, that is a different thing and it should be done as one.

See what we are recruiting for.